Week 2 – How to measure it?

Welcome to week 2 of the virtual consultation on developing summary measures of HIV-related stigma and discrimination. From 26 to 30 August 2019 the focus of the consultation will be on identifying indicators to measure the domains and sub-domains discussed during week 1.

To contribute and/or read contributions by others to the virtual consultation, please sign in. If you have not registered yet, you can do so here. If you have not previously done so, we would be grateful if you could complete the optional demographic questions at the following link, to assess representativeness of contributions: 


Please see draft proposed indicators for the domains and sub-domains identified to construct summary measures of HIV-related stigma and discrimination and of stigma and discrimination experienced by key populations most affected by HIV here.

The following criteria and considerations will guide indicator selection:

    • Relevant to monitoring progress on the domain/sub-domain they intend to measure;
    • Capable of showing measurable differences between countries, and measurable change over time at the national and global level;
    • Relevant across countries;
    • Feasible to measure;
    • Valid and reliable;
    • Represent the best available measure;
    • Easily understood and provide a clear measure of progress;
    • Aligned as much as possible to existing global frameworks, including the SDGs;
    • Prioritizing indicators for which data are currently available and regularly collected;
    • Balance the number of indicators per domain/sub-domain to adequately measure stigma and discrimination.

We are grateful for your comments and inputs on one or more of the questions below that will guide our discussion this week. Participants are welcome to contribute in any language.

Guiding discussion questions:

    1. Do proposed indicators adequately measure the corresponding domain/sub-domain?
    2. Are there any questions/indicators missing? When proposing additional existing questions or indicators, please provide the indicator definition and specify if there is an existing data collection mechanism, with any relevant links. Please also note any areas for which questions or indicators don’t currently exist but would be important to assess stigma and discrimination.
    3. Which indicator(s) provide the most information on the corresponding domain/sub-domain?

Once you have signed in you can post your comments in the discussion forum for this week. If you would prefer to keep your responses anonymous, you can use a nickname when creating your profile.

Contributions throughout this virtual consultation will inform the development of summary measure(s) of HIV-related stigma and discrimination, to better understand the situation in countries, to inform actions to address them and monitor whether actions are leading to improvements for people.