Week 1 – What to measure?

Welcome to week 1 of the virtual consultation on developing summary measures of HIV-related stigma and discrimination. From 19 to 23 August 2019 the focus of the consultation will be on identifying the domains and sub-domains that summary measures of HIV-related stigma and discrimination and stigma and discrimination experienced by key populations most affected by HIV should include.

To contribute and/or read contributions by others to the virtual consultation, please sign in. If you have not registered yet, you can do so here. We would be grateful if you could complete the optional demographic questions at the following link, to assess representativeness of contributions:

https://www.surveymonkey.com/r/SD_summarymeasures_Eng 

The domains and sub-domains included in the summary measure(s) should capture the key dimensions of stigma and discrimination, based on available evidence and peoples’ experiences. During weeks 2 and 3 of this virtual consultation, we will be seeking inputs and recommendations of how to measure these domains and sub-domains and how to meaningfully combine these measures.

Please see draft proposed domains and sub-domains for summary measures of HIV-related stigma and discrimination and of stigma and discrimination experienced by key populations most affected by HIV here.

We are grateful for your comments and inputs on one or more of the questions below that will guide our discussion this week. These may be technical contributions, or also your experiences that you may be willing to share. Personal experiences will help determine that the various dimensions of stigma and discrimination are included and that measures reflect peoples’ realities. Participants are welcome to contribute in any language.

Guiding discussion questions:

    1. Based on your knowledge and experience, what are the aspects of stigma and discrimination that should be included in summary measures of:
      • HIV-related stigma and discrimination?
      • Stigma and discrimination experienced by key populations most affected by HIV?
    2. Are the proposed domains and sub-domains to be included in the summary measures the right ones? Are there any missing? Please share references to specific studies or experiences to accompany your suggestions.
    3. As a whole, do the proposed domains and sub-domains meaningfully reflect HIV-related stigma and discrimination / stigma and discrimination experienced by key populations most affected by HIV?

Once you have signed in you can post your comments in the discussion forum for this week. If you would prefer to keep your responses anonymous, you can use a nickname when creating your profile.

Contributions throughout this virtual consultation will inform the development of summary measure(s) of HIV-related stigma and discrimination, to better understand the situation in countries, to inform actions to address them and monitor whether actions are leading to improvements for people.